| Location | Thamesmead, Erith |
| Age | 49 years |
| Date of Birth | 16/08/1957 |
| Date of Death | 28/09/2006 |
| Visitors | 9,446 since 02/01/2007 |
| Creator |
My uncle barry was known to his nices and nephews as unk... he was born on 16th of August 1957 and sadly passed on 28th September 2006 after sadly suffering for 49 years of his battle for life.
My unk was born with a very very rare diease called mannosidosis, so rare that to date he was the only person in the united kingdom to have this. His entire life was a struggle to live, battling every day to survive, a survival life spam was given numerous times only for my unk to outlive it, doctors was baffled and just told us he could die at any time. the eldest person to survive was 24 so as my unk passed 24 everyday with him was a blessing. when my grandad passed 24th january 2005 my unk stopped fighting for his life as his daddy was gone and as hard as we tryed we couldnt make him understand that he wasnt coming back, you see... due to this diease my unk had the mind of a child, he was partly blind as well as partly deaf... and couldnt do anything for himself. Thankfully he had a fantastic family behind him to help him along... from the eldest to the youngest. i dont think any of us saw him as an average uncle, he was a huge part of all our lives.. a special part of our lives. he touched the heart of so many people and made so many of us better people for it!
he loved all his little toys if they played music or moved about he loved them and the house was full of them, my kids will always see them as an unk toy.
he had a passion for music, you would always see him sitting in his chair with his karaoke on and a mic in his hand singing top of his voice, not that you could understand most of it but it kept him hapy which in return kept us happy. he loved daniel o'donnell i think we all know that mans dvds from beggining to end.
as he had the mind of a child christmas was always a great time for him he absolutely loved it, my nans home was always like santas grotto, whenever the tree and lights went up he knew christmas was coming... as he didnt know dates and times etc he would know it was soon by the decorations. then on christmas eve we would take the fairy off the top of the tree, he thought she would fly away to help santa... he knew at that moment that when he woke up the next day santa would have been and he would have many gifts waiting for him. so as soon as he noticed the fairy gone he wanted to go to bed bless him not understanding that it was only about 5pm... none of us dreamed that that would be the last time our fairys would fly away.
I never ever thought i would see the day that i had to bury my unk, i knew deep down that one day it would come but where he kept defying the odds so many times i guess i just never thought it would happen.... but it did.
My nan had taken my unk to the chalet (they had since b4 i was born) and he just wasnt himself, he wouldnt eat and he wouldnt drink, that spark from his big blue eyes had just gone, was almost as though he had given up fighting. after seeing a doctor there and being told he had a urine infection my nan decided to bring him home as she was finding it hard coping alone with him. we called a doctor out to see him who wold us, yes he had a uine infection which was causing his breath to become shortened and his temperatures etc.
one day me and my mum went round to see him and he looked ill, we all got worried and dialed 999, he just wasnt himself and his breathing was getting worse. the paramedics decided to take him to hospital, put him on oxygen and took him down, by the time he got in the ambulence his eyes closed and he went into coma like state.
once at the hospital we was asked what his life dependency was like... we knew what they was asking... we replyed "his our life" and so the doctors worked hard to save him.my uncle went straight to critical care where he had the best care ever. hooked up to drips.. venterlators feeding tubes, heart monitors it was all so so scarey. as days went past he began come come around but was so scared he needed to be sedated... he was kept sedated for a few day till they let us stay with him over night as we was able to calm him when he started to lose his temper. A doctor came to us one day telling us my unk had now caught septicemia and that things didnt look good. hope seemed to be drifting away but my unk never gave up.. he continued to fight as he had done all his life. then he contracted MRSA and bit by bit our hopes were being taken.. he was in a side room now and we was told they was going to take him off of his ventorlator as risk of infection was high... we all thought our world was going to end.... but once again he defyed odds and carried on fighting and continued to breathe on his own. by now he had been in critical care a little over 2 weeks and things finally started to look up. the sedation had stopped, the tubes and wires were gone. i was there with my nan the day they told us my unk could have his first cup of tea!! you see my unk loved his cup of tea and kept asking for one but wasnt allowed. a picture was taken of his first cup at the hospital and was sent to everyones mobile that day, titled barry boys got his cup of tea... as silly as it sounds that on its own made us all cry.
finally he was getting better, he was drinking and eating a little was even trying to get out of bed which was great, doctors sopke about moving him to a regular ward, we was over the moon.
but as the day wore on he began sleeping more... just seemed very tired so we figured he had exhaused himself... he slept all through that night which is something he rarely does. nothing prepared us for the following day, my unk had gone downhill fast... doctors told us that day that there was no more they could do for him, my unk was going to die! they told us they didnt think he was going to survive the night out.
all family was called up the hospital, all my unks life his family was there for him... and we was all going to be there for him till he took his last breath. we all sat crowded around his bed holding his hands, massaging his little legs, touching his hair... any part of him we could to let him know we was all there for him and that he wasnt alone. by now my unk wasnt even conscious but still he fought. as the clock ticked morning came and still he fought... about 7am his breathing became shallow and he struggled to take his breaths... with every breathe he took we cryed... we willed him to look for hes daddy that he missed so dearly... our heart was breaking to tell him to go... but broke even more to see him struggle for breath. his breaths became less and less till at a few minuites past 11am his daddy finally came to get him and his tool his last breath as his family cuddled him.
my unk was a true meaning to the word fighter, he was 1 in a million, there would never be a man as innocent, loving, caring and determined and him.
everyday is a struggle to cope without him by our side.
unk everyone including myself love and miss you so much, sleep well our hero xxxx
♥═══♥
Love everlasting is etched in the sands of time.
~ Sandra S. Corona
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being to timelessness as it's to time ღ♥ღ
being to timelessness as it's to time,
love did no more begin than love will end:
where nothing is to breathe to stroll to swim
love is the air the ocean and the land
❦
love is the voice under all silences,
the hope which has no opposite in fear:
the strength so strong mere force is feebleness:
the truth more first than sun, more last than star.
~ ee cummings
♥═══♥
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And still, after all this time, the Sun has never said to the Earth,
"You owe me."
Look what happens with love like that.
It lights up the sky. ♥ڿڰۣಌ
~ Hafiz
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Love is not something that comes from another.
It is a state of being that comes from within.
The Love that is inside of you is without conditions or expectations.
It is not limited or restricted by time and space in any way.
Unlike physical Love this Love will never diminish or fade with time.
It is eternal and will not ever let you down.
I promise you that it will always be there to let the Light in
and guide you safely Home.
Love connects each of us to one another
and is the underlying energy behind all things.
Love literally is everything. ♥ڿڰۣಌ
~ Paul Adkins
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ჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓ
ღ LIFE is a series of little deaths out of which life always returns.
…~ Charles Feidelson, Jr.
ღ LOVE is the vital core of the soul, and of all you see, only love is infinite.
…~ Rumi
♥ ═ೋღ♥ ═ೋღ♥
ღ A Farewell ღ
FAREWELL, oh dream of mine!
I dare not stay;
The hour is come, and time
Will not delay:
Pleasant and dear to me
Wilt thou remain;
No future hour
Brings thee again.
❦
She stands, the Future dim,
And draws me on,
And shows me dearer joys—
But thou art gone!
Treasures and Hopes more fair,
Bears she for me,
And yet I linger,
Oh dream, with thee!
❦
Other and brighter days,
Perhaps she brings;
Deeper and holier songs,
Perchance she sings;
But thou and I, fair time,
We too must sever—
Oh dream of mine,
Farewell for ever!
~ Adelaide Anne Procter
ჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓჱܓ
︽☆︽ ︽♥︽ ︽☆︽ ︽♥︽ ︽☆︽︽☆︽ ︽♥︽ ︽☆︽ ︽♥︽
✽ Sunrise Never Failed Us Yet ✽
Upon the sadness of the sea
The sunset broods regretfully;
From the far lonely spaces, slow
Withdraws the wistful after-glow.
*ღ*
So out of life the splendor dies,
So darken all the happy skies,
So gathers twilight, cold and stern;
But overhead the planets burn;
*ღ*
And up the east another day
Shall chase the bitter dark away;
What though our eyes with tears be wet?
The sunrise never failed us yet.
*ღ*
The blush of dawn may yet restore
Our light and hope and joys once more.
Sad soul, take comfort, nor forget
That sunrise never failed us yet!
✽ Celia Thaxter ✽
☆ * ☆ * ☆ * ☆ * ☆
✽ Stars In My Crown ✽
I am thinking today of that beautiful land
I shall reach when the sun goes down
When through wonderful grace by my Saviour I stand
Will there be any stars in my crown?
✰...✰
Will there be any stars in my crown
When at evening the sun goes down
When I wake with the blest in the mansions of rest
Will there be any stars in my crown?
✰...✰
In the strength of the Lord let me labour and pray,
Shall I watch as a winner of souls
That bright stars may be mine in the glorious day
When His praise like the sea billow rolls?
✰...✰
Will there be any stars in my crown
When at evening the sun goes down
When I wake with the blest in the mansions of rest
Will there be any stars in my crown?
✰...✰
O what joy will there be when His face I behold
And with gems at his feet to lay down
It would sweeten my bliss in the City of Gold
Should there be any stars in my crown.
✰...✰
Will there be any stars in my crown
When at evening the sun goes down
When I wake with the blest in the mansions of rest
Will there be any stars in my crown?…
✽ Hymn by Eliza E. Hewitt, tune by John R. Sweney ✽
︽☆︽ ︽♥︽ ︽☆︽ ︽♥︽ ︽☆︽︽☆︽ ︽♥︽ ︽☆︽ ︽♥︽
BARRY-BOY
hi darling sorry its late went down to your resting place today it always looks so lovely there and i feel so close to you,the sun was shining so nice and warm im glad because you never did like the cold.....barry-boy i miss you so much think of you every day and always will till the day we meet again so hard to belive its 5 years since you left us. nite nite boy xxxxxx
For Barry. xxx
♥ REMEMBERING YOU ON YOUR ANGEL DAY ♥
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♥ I Miss You ♥
Another year without you
Tears flow – within this broken heart of mine
I am never complete
A shadow of my former self
You went to the Garden of Paradise this day, that year
I should be happy for you, but I wish you were here so much
And all I can do is cry.
♥ Written by Melanie Doe 10/09/10 ♥
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-۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰-
An old monk was once asked why he cared for ancient graves,
and why he cleaned the stones to preserve the writing carved there.
His reply was simple: “They still have their names. They will
always have their names.”
A life infused with love has consequences that reach beyond time
— ensuring that names, and places, and memories of what was,
still are, and always will be. They are not dead, can never die.
~ Gregory & Suzanne Wolfe
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-۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰----۰̮̑●̮̑۰-
~ Remembering you always, forgetting you never ~ xxx
♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡
~ SIC VITA ~
Like to the falling of a star,
Or as the flights of eagles are,
Or like the fresh spring’s gaudy hue,
Or silver drops of morning dew,
Or like a wind that chafes the flood,
Or bubbles which on water stood:
Even such is man, whose borrowed light
Is straight called in, and paid to night.
The wind blows out, the bubble dies,
The spring entombed in autumn lies,
The dew dries up, the star is shot,
The flight is past, and man forgot.
~ Henry King (1592-1669)
♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡ ♡
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